We advocate for individuals, families and the wider community on issues including:
In 2015, Lynch Syndrome Australia conducted the first-ever international survey of Lynch syndrome gene carriers to identify their unique needs. This survey provided valuable information which is being utilised to develop strong plans of action for the future and isolate key areas for advocacy in upcoming years.
As the leading voice of individuals and families living with Lynch syndrome in Australia, we are dedicated to ensuring that relevant issues and concerns are addressed. Lynch Syndrome Australia is a member of
We partner with Universities, non-government organisations and research groups to support research into Lynch syndrome, its treatment and consequences for families, for medical practice and for communities and have presented at research conferences including COSO. Our research partners include:
We actively engage with the Lynch syndrome community, locally and globally, to ensure we understand the needs of individuals and families with Lynch syndrome, and reconcile this against the current medical knowledge and standards of medical practice. We undertake needs analyses to direct our efforts to those activities and outcomes that have greatest benefit in addressing the concerns of families with Lynch syndrome.